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Complex Spina Bifida Diagnosis Connects Doctors on a Mission to Treat a Bubbling 5-year-old Patient

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Credits: Wolfgang Moroder, CC BY-SA 3.0

Jessica Ringer remembers the refreshing day of December, when doctors diagnosed her unborn daughter Kaley as spina bifida nearly six years ago. Uterus.

“At that point, I didn’t know if she would live until childbirth,” said Jessica, who was 20 weeks pregnant at the time. “It was a very difficult Christmas.”

But today, Kaley is a hilarious five-year-old who loves playing with Barbie dolls, getting homemade manicures, and playing at home in the adaptive kitchen that her parents Jessica and Matt made for her. is. A kitchen customized for Kaley’s small stature is just one of many ways Ringer aims to lead her daughter a normal life.

“We’re trying to adapt as much as we can, especially when it comes to accessibility and Cary’s mobility,” said Jessica Ringer, who crawls when Cary isn’t in a wheelchair. “But what we have learned is that spina bifida children are like snowflakes. Everyone is different and all symptoms are different.”

According to the US Centers for Disease Control and Prevention, about 1,427 babies are born in this condition each year across the country. They often suffer from mild to severe physical and intellectual disabilities, depending on the size and location of the defect and whether parts of the spinal cord and nerves are affected.

This is especially true for Kaley. She suffers from hydrocephalus. That is, there is excess water in and around the brain. Craniosynostosis, or malformed skull; scoliosis; chronic hip dysplasia makes her unable to walk. She is also prone to seizures because she has only one kidney.

These problems require regular treatment, and Lingors noticed on the day Kaylie was born. Similarly, she has a mission to bring together multiple doctors at the University of Texas Houston Health Science Center (UTHealth Houston) to help Cary lead a happy life.

Cary was taken to the operating room within hours of birth, where a pediatric neurosurgeon, Dr. Manishshire, exposed the spinal cord by reconstructing the spinal canal around the spinal cord and returning the nerve tissue to the spinal cord. I carefully repaired the part. canal. Shah then called on pediatric plastic surgeon Dr. Matthew Graves to help him close his muscles and skin to complete the procedure.

“We always do our best to repair the spinal cord within the first or second day of life,” said Shah, an associate professor of pediatric neurosurgery at McGovern Medical School at UT Health Houston, where Greives is an associate professor and director of plastics. I am. Reconstructive surgery.. “The plastic surgery team will help build skin on these defects and close them properly to prevent meningitis.”

Shortly thereafter, Shah placed a small hollow tube called a shunt into Kaley’s brain to drain excess water. The steps taken to prevent hydrocephalus-related brain injuries are generally valid for about 10 years.

However, it is certain that this procedure is not the first and not the last time Shah and Graves have joined forces to help the patient. The two, just six days apart, joined McGavan Medical College and its faculty member, Dr. UT, in August 2014, joking that Shah had recruited his best friend for clinical practice.

This collaboration of multiple disciplines is common for physicians examining patients with spina bifida. Shah and Greives reunited four years ago to perform a skull remodeling procedure at Kaylie.

During the procedure, they remodeled Cary’s skull bones to create a more normal head shape, giving her brain room to grow.

“Our surgical goal for patients with multiple medical problems associated with spina bifida is to focus on improving their quality of life,” Greives said. “Everything we do with Cary is a step-by-step way. How much do we need to do and how does it benefit her now? Cary is in a one-off situation No. She needs the whole team. The number of people who look at her and see how she is progressing. There were some complications along the way, but it’s everyone here That’s one of the reasons I know Kaley. “

For many years, Cary’s presence has also been a highlight of pediatric orthopedic surgeon Lindsay Crawford, MD, an assistant professor of orthopedic surgery at McGovern Medical School, who continues to treat problems surrounding the 5-year-old spine, hip dysplasia, and feet. increase. Cary is one of many patients shared by Crawford and Shah working together in a spina bifida program within the UT Physicians Pediatric Surgery–Texas Medical Center Clinic.

Already, Crawford has created a cast of Kaley’s legs. One is clubfoot and the other is affected by the congenital vertical talus (CVT). This is a rare disorder that manifests itself as an extreme case of flat feet. On the left clubfoot, Crawford performed two surgeries designed to release Cary’s Achilles tendon, with posterior medial release scheduled later. On the right foot with a CVT, Crawford will perform a minor bone readjustment procedure and will perform a tendonectomy or tendon release in the future.

“Spina bifida starts from the back, but it affects the nerves that go down to the legs, so without these surgeries and the use of braces, Cary would not be able to wear shoes, stand up, and other skills. “Crawford said.” We’ve started school and we’re trying to get Cary’s feet back in place so she can fit in her shoes. “

Cary has already endured many obstacles in her short life, but Crawford said her extroverted patients always come to the clinic with a smile. She has also done more than just a fair share of advocacy activities, including serving as a grand marshal for the spina bifida awareness Christmas parade. Spina bifida During her appointment with the clinic, and with Dr. UT, she continues to educate the general public about her child’s condition.

“These doctors have taken care of Kaley from the beginning, and they are the most consistent we have in her medical care,” said Jessica Ringer. “Call them when you need something. Indeed, they were a godsend.”

Studies have shown that spina bifida surgery restores brain structure before birth.

Quote: Complex dichotomy was obtained from https://medicalxpress.com/news/2021-10-complex-spina-bifida-diagnosis on October 1, 2021 in a hilarious 5-year-old patient (10 2021). Unite doctors on a mission to treat (1st of March)-physicians.html

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Complex spina bifida diagnosis connects doctors on a mission to treat a bubbling 5-year-old patient

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European Court of Human Rights Affirms Freedom of Religion or Belief of Russian Scientologist

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LOS ANGELES, Calif., Oct. 6, 2021 (SEND2PRESS NEWSWIRE) — The European Court of Human Rights (ECHR) has once again affirmed the rights of Scientologists in Russia to practice their religion based on Article 9 of the ECHR Convention for the Protection of Human Rights and Fundamental Freedoms, announced the Church of Scientology International.

PHOTO CAPTION: European Court of Human Rights (Photo by Katrinitsa, Creative Commons license).

Article 9 states:

“Everyone has the right to freedom of thought, conscience and religion; this right includes freedom to change his religion or belief and freedom, either alone or in community with others and in public or private, to manifest his religion or belief, in worship, teaching, practice and observance.

“Freedom to manifest one’s religion or beliefs shall be subject only to such limitations as are prescribed by law and are necessary in a democratic society in the interests of public safety, for the protection of public order, health or morals, or for the protection of the rights and freedoms of others.”

In its September 28, 2021, judgment in Kuropyatnik v. Russia, (Application no. 64403/11), the ECHR ruled that Scientologist Vladimir Leonidovich Kuropyatnik, a Moscow Scientologist, was illegally detained by a Russian police officer who questioned him on the basis of his membership in the Scientology religion.

The Court found Kuropyatnik’s October 13, 2010, detention deprived him of liberty and violated Articles 8 and 9 of the Convention for the Protection of Human Rights and Fundamental Freedoms which guarantee the right to respect for private and family life and freedom of thought, conscience and religion.

The ECHR noted that at the time this incident took place, the Church of Scientology had been registered as a religious organization in Russia for more than two decades and that Russian authorities had consistently over the years acknowledged the religious nature of Scientology. This Court found Russian police targeting Mr. Kuropyatnik for being a Scientologist was a blatant abuse of his religious freedom by the Russian state and ordered Russia to pay him EUR8,000 in damages for violating his human rights.

This decision is consistent with the European Court of Human Rights landmark decision of 5 April 2007 in the case Church of Scientology Moscow v. Russia (Application no. 18147/02), which overturned the Moscow city government’s refusal to register the Church of Scientology of Moscow as a religious organization. The Court found that Russia violated the rights of the Church of Scientology under ECHR Article 11 (the right to freedom of association) “read in the light of Article 9” (the right to freedom of religion) when it refused to reregister the Church of Scientology of Moscow.

Once again, the European Court of Human Rights has upheld that Scientologists are guaranteed the same rights by the European Convention on Human Rights granted to those of any other religious organization.

The European Court of Human Rights was established to create a mechanism for the resolution of human rights complaints against States parties to the Convention for the Protection of Human Rights and Fundamental Freedoms. The Convention was adopted by the Council of Europe in 1950. Located in Strasbourg, France, the Court has jurisdiction over 47 states in Europe, including Russia, with a combined population of some 820 million citizens.

This announcement was originally published as a blog on the Scientology Religion website. The Church of Scientology publishes this blog to help create a better understanding of the freedom of religion and belief and provide news on religious freedom and issues affecting this freedom around the world.

The Founder of the Scientology religion is L. Ron Hubbard and Mr. David Miscavige is the religion’s ecclesiastical leader.

For more information on Scientology, visit the Scientology website or the Scientology TV network.

RELATED LINKS

https://www.scientology.tv/

https://hudoc.echr.coe.int/eng#{%22appno%22:[%2264403/11%22]}

https://polis.osce.org/convention-protection-human-rights-and-fundamental-freedoms-amended-protocol-no11

News Source: Church of Scientology International

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Debt Cap Voting: Republicans Are Poised to Thwart Efforts to Raise Borrowing Limits As Defaults Are Approaching

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Washington-As the country barrels towards default, Republicans are ready to sink Democratic efforts to suspend federal borrowing restrictions.

Senate Republicans are blocking measures passed in the House of Representatives that will be suspended Debt limit Until December 2022. At least 10 Republicans must join all Senate Democrats to break the GOP filibuster and pass the bill with a simple majority vote.

Democrats argue that this will give Republicans exactly what they are looking for: a country’s borrowing limit approved only by Democrats.

“Tomorrow’s vote is not a vote to raise debt caps, but rather a procedural step to get Democrats to raise debt caps,” Senate leader Chuck Schumer said Tuesday. “We’re not asking the Republicans to vote for you, they’re just letting them vote.”
more: Why Daily Americans Need to Care About Debt Caps

But the Republicans aren’t retreating. They have full control of Washington and plan to pass trillions of socio-economic packages with zero Republican input, so Democrats must act to raise their federal debt caps themselves. I’ve been doing things that don’t happen for months.

“They said they were ready to work on their own,” Senate Republican leader Mitch McConnell told reporters Tuesday. “The easiest way to do this is to use the tuning process, as I’ve pointed out for two months.”

Republican McConnell has reiterated that Democrats need to raise debt limits to cover the potential trillions of costs in the unpassed portion of President Joe Biden’s agenda, but it has already taken. Debt limits need to be raised to cover spending under the unified Republican-backed Trump administration.

Senator Lindsey Graham (RS.C.) said she did not support voting on ABC News on Tuesday.

“We are not going to empower a radical march towards socialism,” said Graham, a top Republican member of the Budget Committee.

Senator Bernie Sanders, chairman of the Senate Budget Committee, has highlighted potential solutions, including temporarily suspending filibuster rules that require 60 votes for most bills.

“It could go down, at least for a demand on a debt limit to end the filibuster and pass it with 51 votes,” Sanders suggested.

However, to do this, a rally of 50 Democrats needed to remain unified, and both Senator Joe Manchin and Senator Kyrsten Sinecine of West Virginia opposed the change in filibuster rules.

Republicans haven’t been recorded yet and say they’re ready to join the Democratic Party to pave the way for a final vote on Wednesday’s debt restrictions, but moderate Senator Lisa Murkowski, R-Alaska, said Many have opened the door to potential participation.

“I want to make sure I’m doing everything I can to avoid falling into the default situation, and I don’t want to get close to it,” Marcusski said. “We need to confirm. We just need to confirm.”

The country technically reached its debt cap on August 1, and the Treasury took special steps to pay the country’s invoice. However, Treasury Secretary Janet Yellen said her division’s efforts would be completely exhausted by October 18, and defaults would be nearly certain.

Pressure is rising alongside party gridlock, and backup plans have not surfaced.

McConnell and his meeting insist on using a swift budgeting tool called reconciliation that allows Democrats to break filibusters and pass certain laws. The use of this mysterious process is tedious and can take weeks, freeing Democrats into a series of potentially politically distressing votes.

However, insisting on using this process could have additional political interests for Republicans. It will leave Democrats a record of raising debt caps by a large amount, but Wednesday’s vote-simply suspending debt caps at a certain amount-is not. It will affect the Republican story that Democrats are out of control spenders.

Senator Mike Rounds (RS.D.) said on Tuesday that he was “very interested in a particular amount.” “They would have to come in front of the Americans and say,’This is the amount we’re going to spend, so we’re going to increase our debt cap by X.’ There. “

Some Democrats say they support the use of a settlement if it means a quick solution to the debt restriction issue. Manchin said the process should be considered, and Connecticut Senator Richard Blumenthal said when asked by reporters whether to consider fast-track budgeting tools, “everything should be on the table. “.

But with each passing day, Democrats are limited in the amount of time they have to quickly track up debt cap increases through a multi-step process, and Democrats have not begun work on the reconciliation process, even behind the scenes. Tell ABC News about it.

“No, not at this time,” Sanders told ABC News.

Some Democrats were more emphasizing.

“The settlement was never at the table,” said Massachusetts Senator Elizabeth Warren. “I don’t have enough time for the settlement to work.”

But on Tuesday, Schumer did not explicitly exclude it.

Schumer repeatedly mentioned Wednesday’s vote as the preferred way to raise debt caps when asked if they would be excluded using the budgeting process.

“Reconciliation is a complex process drawn out. We have shown the best way. We are moving in that direction,” Schumer refused to entertain Plan B.

If a country defaults, the consequences are definitely catastrophic. The White House warned that unprecedented defaults could shock the global economy and cause a recession. The political impact of both parties is unknown.

Copyright (C) 2021 ABCNews Internet Ventures.

Debt Cap Voting: Republicans are poised to thwart efforts to raise borrowing limits as defaults are approaching

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Which Are the Two Options You Have to Choose From If You Want to Bet on the Go?

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People use their computers and laptops to bet on sports and play casino games all the time. Thanks to the different online betting websites, accessing your favorite hobby has never been easier. Everyone (assuming you live in a country where i Gaming is legal) can try out several betting websites in a matter of seconds. There are many differences between the brands, but in general, all of them allow you to use different features and promotions.

Even though those things are great, there are some drawbacks that have to be taken into account. The biggest one is related to the fact that you need to have access to a computer in order to bet. Some people don’t consider this to be a problem because their job requires them to sit in front of the computer all the time. However, others don’t have the privilege of using a PC or a laptop while at work. That’s why those people have no other option but to use their mobile devices.

We live in a world where most people around us use a smartphone or a tablet daily. We always carry those devices with us, which makes them the ideal “tool” to allow us to bet on the go. Let’s take a look at the two things that you can do if you want to have fun without the need for a computer.

Downloading and installing a mobile app

The first thing you can do if you want to use your smartphone or tablet is to download and install a mobile app. This process is complicated and it might take some time, depending on your preferred mobile OS. Luckily, punters with Android and iOS can get the BoyleSports app directly from this source by EB and start using the services of one of the most popular online betting platforms. Although you can download and install this app within seconds, there are many potential problems that some users might come across if they want other apps.

The most common issue Android users have to face is the lack of an app inside Google Play. Only a few iGaming sites have apps there, so you will most likely have to download and install an apk file. To do that, you need to open your device’s settings and enable the option to install apps from different sources.

Using a mobile website

The mobile application that you might want to download and install has a lot of advantages. However, unless you get the BoyleSports app for Android and iOS from Efirbet, you may spend a lot of time trying to find a legit apk file. The good news is that there is a solution to your problems – the mobile website.

Online bettors who don’t want to deal with the problems of getting an app can simply use the operator’s mobile website. Every online casino and bookmaker has a mobile version of its desktop site. Some of them try to make exact copies of their original websites, whereas others are more innovative. No matter which kind of mobile website you choose, it will let you bet on sports and play the casino games you want to. Furthermore, you can use the different features and promos.

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